Natalia’s Purpose is to find a cure for Pulmonary Vein Stenosis (PVS) and support families with the unimaginable struggle of caring for seriously ill infants and children.
Families Helped
Financial Assistance
Toys, Supplies & Food
Countries Touched
Pulmonary Vein Stenosis (PVS) is a rare, aggressive cardiovascular condition. It is recognized as being the stenosis of one or more of the pulmonary veins that return blood from the lungs to the left atrium of the heart.
Currently there is not a cure for PVS, only treatments to essentially “buy time.” Treatments available include catheterizations, stents, and ballooning of the veins to hopefully relieve congestion in the lungs and ease symptoms. Some candidates can also receive medication to slow the process of the veins narrowing.
Help find a cure so infants can have a fair chance at life! Infants & children with a severe progressive form of PVS have a 1-2 year survival rate of 50-60%. HELP change that!
Previously raised over $1,500 in gift cards. $500 for the families emergency fund & helped give each child 5 toys & 2 gifts for each parent for the Holidays.
Help find a cure so infants can have a fair chance at life!
Help alleviate some of the stress that the holiday season brings by donating a toy to the children and siblings.
Help pay towards their rent/ mortgage or utilities so their only worry can continue to be their child.
I love that book and share it with so many parents and it has been extremely helpful for them. I thank you from the bottom of my heart, all my love.
President
Secretary
Treasurer
President
Secretary
Treasurer
Along with helping families with financial aid and support so their only worry can continue to be their child. Many families from all over the world go to CHOP more...
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